BLOG of an ILF user by Anne Pridmore
Awoken by Brody (one of my cocker spaniels puppies) kissing my face swiftly followed by Eben and Suzie Brodys mother. Thought I better get up and greet the day so pressed the buzzer for my PA had a quick wee then waited for my first cuppa in bed, don’t get up too early these days.
Had breakfast (in bed) and decided to have strip wash rather than a shower. Asked PA to check for pressure sores as I can easily get them can result in stay in hospital. P A assisted me to get dressed and went into bathroom for teeth hygiene all facilitated by PA. Had BIG mug of coffee and felt ready for day.
Went with PA to get vegetables for dinner and took Eben with me. Had long conversation with my choirmaster’s husband about our new season. Without ILF I would not be able follow my love of singing. Arrived home and asked PA to unlock office and fire up computer. Answered some emails then had lunch prepared by PA. Made sure my fluid levels were up as had nasty scare last week because I failed to drink enough I couldn’t go for nine hours. It is crucial to drink on the hour failure to do this will damage my kidneys. This of course does result in many trips to the toilet facilitated by PA and also the odd accident which means I have to have another shower and change of clothes. In the bad old days before ILF I remember having to dry my clothes (I had on) with a hair dryer. I also was forced into having a hysterectomy because I had very heavy periods and could not keep clean because of having only “pop ins” a few times a day. My ex husband was infertile and we were refused AID or adoption. I was still young enough to have children and this has always been a sadness. Had lunch mushrooms on toast prepared by my PA.
Need to stop now as am going to exercise three dogs up the recreation ground with my PA who will assist me and pick up the pooh!
Had pork roast cooked by PA.
Had bad night owing to pain needed turning six times. Failure to do this results in pressure sore with can lead to skin graft.
23rd August 2014
Took dogs with PA walk on canal – got wet which necessitated PA changing me – find this tiring. Decided to have a shower and hair wash etc. Remember the days when I had to rely on bath nurse once a week my day was Monday and of course every Bank Holiday falls on a Monday so that meant waiting three weeks.
In the evening I had dinner but as it was freezing decided to go to bed at 8.00 pm and play bridge on my ipad. No more not knowing when the community nurse would come at any time to suit her. This is 28 years ago and I was much younger then, even though I was the youngest on her list she often came at 7.00 pm. I am sure it was more about “power and control” rather than putting me to bed at a reasonable time. Had cup of tea and chat with PA had drugs (prescription) and settled down to good book. Another very disturbed night – having to wake my PA five times to reposition me.
25th August collect my friend from her home to go to the cinema, My PA drives for me and I can recall the days before ILF when I was imprisoned in my own home. I had absolutely no social life at all. When we got home me and my PA took my two dogs to the local recreation park. This was only possible because my PA was able to pick up the dog pooh.
26th August had to get up early to be ready for my student who I am teaching to update our website. The beauty of having ILF to fund PAs is that if I need to get up early or fancy a lie in I am able to do this. Before the ILF I was at the mercy of the home help service and had no choice or control in my life. Going back to the mid 80s when I was entirely dependent on statuary services I was controlled by whoever determined the home carers hours. I remember raging about the fact that it was impossible to visit friends or have relationships because I never knew the time people would turn up. There was a particular occasion when I met a man and invited home to stay overnight with me. I rang the social services department to ask them to cancel my visit. But they told me that was impossible so I locked the back door and stuck a notice on the door which read “NO HELP NEEDED MAN IN HOUSE”. During the afternoon I was visited by the person who operates the volunteer centre. She came to give me feedback on the IT support I had been giving to an elderly lady in my district. I had only been able to do this because my PA was able to take and collect me.
27th August Had to be up early for PA training as I am recruiting a new PA this went on until 11.00 am then I collected my friend and took her to Leicester to choose a new outfit for a wedding. Ate lunch in town then came home all with the support of my PA.
28th August Went down town with PA grocery shopping. Then made orange and chocolate cake with PA looks and tastes yummy!
30th August Had leisurely breakfast made by PA then had lunch after which my PA drove me to cinema film was mediocre. Had lovely roast cooked by PA. Both dogs up the rec with my PA – dogs had lovely time. Watched some TV then decided to have an early night, perhaps readers might think nothing unusual about this but in the old days before ILF I had no choice as to when I went to bed.
31st August Trip to Aldi to purchase the food for our holiday in two weeks. Came home PA put shopping away and we both had lunch.
Mark Williams-My ILF Photo Diary
This diary aims to show how the ILF helps me to lead an independent life in the community. Without the ILF I would be trapped in my own home with no life.
Saturday 23rd August 2014
Today I met up with two friends, one of whom I knew at school and had lunch with them in a café. This is how the ILF helps with my social life.
Thursday 28th August 2014
Today I went to an accessible climbing event where I sat on the Bristol Disability Equality Forum Stall in order to publicise the group and get more members.
Keep up with our new ILF Diaries page coming soon
join the facebook group or find other ways to support the campaign at the link
A second court case against the DWP on the closure of the Independent Living Fund (ILF) will take place at the Royal Courts of Justice on the 22nd and 23rd of October. It is expected to last one and half days.
There will be a vigil outside the courts from 12.30 on the 22nd to support the ILF users taking the case and to support our right to independent living as enshrined in the UN Convention on the Rights of Persons with Disabilities- article 19
Article 19: “Living independently and being included in the community”, states that “disabled people have a right to live in the community; with the support they need and can make choices like other people do”.
Please join with us to show your support!
The closure of the ILF has obvious implications for the UK’s chances of meeting such obligations. Most importantly for those disabled people who will lose this financial support they will lose any independence and choice in their lives. You can listen to how this vicious attack will affect disabled people at these links.
We will be posting further updates
The campaign to save the Independent living Fund (ILF) is now at its most crucial stage, because it involves you.
Following the high profile Westminster Abbey sit-in and the tea parties held outside DWP offices, we’re now asking ILF recipients to invite MPs to their homes to show them exactly what the ILF means in reality and why it must be kept.
This Summer is a great time to lobby MPs as they’ll be back in their constituencies working hard in the hope of securing votes in the run up to the 2015 General Election.
Please take the simple steps in this toolkit and let us know how it goes so we can target politicians and do everything we can together to save the ILF.
It includes writing a letter/email to your MP, writing to the local paper, meeting your MP, arguments and briefing and an invitation for your MP to the MP Drop in on 2nd September
Independent Living fund Drop in
– with BBC Silent Witness actress Liz Carr
2 September 2014; 2 – 4pm; House of Commons Committee Room 19
This drop in session will be a chance for MPs to find out more about the closure of the ILF which currently supports nearly 18,000 disabled people with the highest support needs to live independently in the community, to contribute to society in employment, education, volunteering, as family members, friends and as members of our communities and to build the local economy through employing teams of Personal Assistants.
The surgery will be an opportunity to ask questions and to speak to Liz who has been enabled, through support from the ILF, to progress an acting career that has spanned stand-up comedy, presenting for BBC and primetime television.
Also in attendance to answer your questions will be a former ILF staff representative and a disabled person who missed out on the ILF through its closure to new applicants in 2010 and whose experiences reflect those of many other disabled people now excluded from participating in areas of life that non-disabled people take for granted.
The Drop in is being organized by PCS Union, Disabled People Against Cuts and Inclusion London.
For more information contact email@example.com or Natasha@pcs.org.uk
Click Save-the-ILF-mobilisation to download the full Save ILF Mobilisation Word document
See video of the excellent John Kelly speaking on BBC news on #ILF August 7th
Disabled people have been expressing their disquiet at the news that the Independent Living Fund (ILF) will cease to exist in 2015, and that the money will be transferred to Local Authorities. To date, out of the 153 surveyed Local Authorities and from 106 responses, only 10 Local Authorities have said they will ringfence the transferred funds to ILF recipients, which means that in all other areas, ILF recipients face a potential reduction of their care packages. How is it likely to happen?
An interesting article was published this morning by Joe Halewood (@SpeyeJoe): http://speye.wordpress.com/2014/08/09/dhp-dubious-hoodwinking-practices-or-how-ids-pulled-the-woolsack-over-the-courts-eyes/
which shows that 16% (UK average) of Discretionary Housing Payments (DHPs) allocated by the Department of Work and Pensions (DWP) to Local Authorities to mitigate the impacts of welfare reforms, and specifically of the infamous bedroom tax have been awards unrelated to welfare reforms. See Table 5 and 6 here: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/322455/use-of-discretionary-housing-payments-june-2014.pdf
It would be interesting to know what the money was spent on, but more to the point, DWP has twice relied on the DHP argument to win a legal case against claimants challenging the bedroom tax policy, and although DWP’s spokesperson said that the government has put in £345m to mitigate the bedroom tax, the figures shown in the Table 5 and 6 not only disprove this but also show that out of the money disbursed, 16% of the allocated funds have been used for awards totally unrelated to welfare reforms. This shows that disabled people are right to be worried about the future of the transferred ILF funds and about the willingness or unwillingness of Local Authorities to allocate these funds to disabled people who have been assessed as having the greatest needs. The ILF should be retained until assurance is given that these people will not see a reduction in their care packages.
Permission has now been granted and the second ILF Court Case will go ahead.
The papers went to a judge today and he has granted both permission and expedition (which means speeding up the usual timetable for the court case). The hearing should be “as soon as possible”, which could mean anything at the moment, as the judges are on holiday and the court has a very bad backlog, but we would hope we will get a trial date for some time in September/October as planned.
On behalf of all ILF recipients we’d like to say a continuing thank you to those involved in taking the case. We know from experience just how gruelling and stressful taking legal challenges can be and we offer our solidarity with you all.
|Monday 7th July 9am: Justice for Tony and George 7th July Sheffield
Tuesday 8th July 12-2pm: Vigil for the WCA Judicial Review High Court, London
Wednesday 9th July 1pm: Legal Challenge to PIP descriptors, Birmingham – Vigil
Thanks to Paul Bull (@CllrPaul4Cowick) for producing this Storify
On Saturday 28th June 2014 I was proud to take a part in a legal non-violent demonstration the purpose of this demo was two-fold:
1 To shame the Coalition to reverse their shameful decision to close the ILF (Independent Living Fund) later this year. There rationale is that it will save money and make life easier for users, we all know it given to people with high-complex support needs and we all know we will be imprisoned in our own homes as nearly all Local Authorities do not have the funds to provide the current level of support we require. He funds release will not be ring-fenced and will in all probability be swallowed up. Meaning we will be given call out care packages.
2 To publish our position to the general public and in doing so gain their support.
This the precise reason why after months of planning we decided to choose Westminster Abbey as the site of our camp. The reasoning behind this being that we figured that as the Church of England had repeatedly voiced their concerns over the way in which the government’s austerity policies where having a detrimental effect on the most vulnerable people in society (vulnerability is placed on you by actions of others rather than your own actions) we concluded they would support us by allowing us to camp on their land, i.e. Westminster abbey. How wrong this assumption would prove!
Let met point out that the plan was to ask Church officials to allow us to camp out for 3 weeks until Parliament closed. This was always a DPAC (Disabled People Against Cuts) action, organisations such as Occupy and UK Uncut were only there to support DPAC. Believe it or not but when it comes to pitching tents crips are crap at such tasks.
We met up early and it was always our aim to pitch up (excuse pun) and take over site at 4pm. Thus causing the least trouble to any member of the general public visiting the Abbey that day.
However when we arrive it was obvious that the security of Abbey had been forewarned, because they had begun to lock gates early. This obvious curtailed our plans. However, we still managed to get a number of activists into the grounds, who secured gates by locking together both and to gates. Thus allowing our support team from Occupy to raise the camp.
Whilst this was happening our negotiation team contacted the Dean of Westminster (Rev. [honestly] Rob Hall) to ask permission to encamp. It became clear within seconds that we where not going to get the desired response. According to my colleague who was there. His reply went something like this: “We at CoE support the theory of standing up against austerity cuts and how they affect everyone. However the Church can’t support any form of Direct Action and we want you to leave immediately.
Before I continue I feel the need to point out to the Rev. that he needs to remember his history. What were the Crusades if not Direct Action?
Anyway back to Saturday’s events not only did the Dean request us to vacate his grounds, he called in the police to extract us. They arrived on mass. We estimate that around 300 police arrive and kettle the 100 or so demonstrators. Apart from surrounding the makeshift camp, they stood on tents and ripped the only accessible tent.
I was one of the DPAC protesters left outside the gates. We asked one of the Officers why they thought the need to come out in such force his response was “that we are. Not here for you but because of UK Uncut Blackblock and Occupy”
I repeat what I said earlier, the part played by Occupy was solely there in a supporting role. This can be evidenced by looking at all pictures and video at no time have I see any banners or signs mentioning any other group or cause other then DPAC and Save ILF
Which leads you to ask the question how did the police know who was there?
During this time the first arrest of three occurred, a person was accused of assault a police officer.
There for a time a situation of tense stalemate the Police kept the protesters inside the cordon and just outside the fence taking to the press and general public.
At this time I found myself sat outside the gate situated to the left of the hot drinks cabin. Whilst I was there one of the protesters came over and asked my PA (Personal Assistant) to get his holdall which contained his medication. Once we got his bag we tried passing over the bag to him. At this time Sgt. Dodd XB 50 decided to step in, pushing the bag back over stating that: “No bags where going to enter.” When performing this task he aggressively pushed both my PA and the owner of bag. You can imagine tensions arose and I and many on street side of gate challenged his right to with hold vital medication from people. There was no leeway given by said Officer Sgt Dodd (or as I told him they miss-spelled name Sgt. Godd). He is pictured below.
Due to the fact that the security of Westminster Abbey was so fast to respond to the “danger” we represented not all resources where able to be sent in. This included bags with meds, food and water. As the policy of police under the direction of the Dean of Westminster Abbey was to deny access of said provisions, disabled people where denied food, water and medication.
During the afternoon Armed Response Police Units appeared to mingle within crowd. This raised tensions even further as it was complete over the top policing of a peaceful protest of disabled people standing up to save them from being returned to institutions.
It has been denied that they were there and imagines removed of them from websites. Below is pictorial proof.
As afternoon turned into evening it became apparent that any overnight sleepover in Abbey grounds was impossible, the people within the cordon discussed the best exit strategy. Rightly it was agreed that the ILF users should have the last say. So it was decided that they would be the last group out. However this was countered by the police saying they would arrest everyone left. So after more discussions it was decided to all leave together.
At 9pm everyone left together triumphantly. Yes triumphantly because we had a victory. I say this because we showed the establishment we won’t go away quietly. It was a great publicity coup that brought the public on our side. We proved that we can work with other groups to achieve our collective goal SOCIAL JUSTICE FOR ALL.
On that subject a BIG thank you to our allies Occupy without who none of Saturday’s action would have been possible.
We can claim a moral and physical victory. The institution that loses most face is the Church of England. Their action on Saturday proves they are the Church of England’s establishment not its people.
THE FIGHT GOES ON!
by Rob Punton
The ILF has transformed People’s lives. The Independent Living Fund does what it says on the tin – it liberates people who wouldn’t otherwise be able to, to live independently. It lets them make choices about how they live – things we often take for granted: when to get up or go to bed, what and when to eat. It allows them to work, to be active in the community and to live in their own homes.
I challenge the Minister today to guarantee that those currently in receipt of ILF won’t become less independent as a result of his decision to close it in June 2015. Because that’s what people fear. That’s what they are frightened of. They fear losing their jobs, losing those staff they employ to support them and losing their independence. They fear being forced out of their homes and into institutions.
The Minister may say he’s passing the monies and responsibility to Local Authorities but this will not ease their fear. And he is rather naïve if he thinks that absolves him from his responsibilities for this decision. I’m afraid he can’t get away with devolving responsibility and blame for the consequences of his decision to others. That’s why I ask him for these guarantees today. For a start Disabled People Against Cuts calculate the current annual cost of support at around £288 million yet the government only identified £262 million to transfer to local authorities. And it gives no reassurances that this money will be ring fenced to be spent only on supporting disabled people to live independently rather than absorbed into broader council budgets.
According to SCOPE £2.68 billion has been cut from adult social care budgets in the last 3 years alone, equating to 20 per cent of net spending. This is happening at a time when the numbers of working-age disabled people needing care is projected to rise by 9.2% from 2010 to 2020. In a recent survey 40% of disabled people reported that social care services already fail to meet their basic needs like washing, dressing or getting out of the house. And 47% of respondents said that the services they receive do not enable them to take part in community life.
So it’s not surprising that people are desperately worried about their future.
The worry is that continued underfunding of social care will mean the care system will simply not be able to support disabled people to live independently. The lack of reference to ‘independent living’ under the definition of the ‘well-being principle’ in the Care Bill which local authorities will need to take into account when providing care further fuels this anxiety.
And it’s not just people in receipt of ILF who are worried – it’s their friends, their carers and their families too. The cases of two of my constituents illustrate this well.
Ashley Harrison is a Scunthorpe United fan like me cheering on the Iron at Glanford Park. At 10 months old he was diagnosed with cerebral palsy. He will turn 30 this year. Ashley has lived in his own bungalow since 2006. The ILF allows him to employ his own team of carers. Ashley is an inspirational man, a fighter but he is worried that the control over his future is being taken away from him.
His mother says:
‘The closure of the ILF would be nothing less than devastating for us as a family. Since Ashley was awarded his ILF allowance the whole family’s lives have changed for the better. ILF understands Ashley’s needs and always do everything they can to constantly improve Ashley’s life and enable him to live independently.
As a family naturally all we have ever wanted is the best for Ashley, which the ILF has helped us achieve. The ILF has always seemed to be the leading and positive force at meetings ensuring that social services match and meet Ashley’s needs. Without the ILF we all face a very uncertain future. The uncertainty that Ashley faced in his early years prior to receiving his ILF award have been daunting, frustrating and of course a constant battle with social services.
The alleged “smooth transfer” over to social services is already proving to be nothing of the sort. Each and every meeting we hold (which are incredibly frequent) leave us having to justify Ashley’s needs as a disabled person. The assessments they ask us to complete are totally unsuitable for the severely disabled.
All of the disabled people living independently with the help of ILF are living their lives to the full. The fear is that if ILF closes these people will lose their human rights and dignity to live their lives as they should.
As a mother who’s fought the last 30 years for Ashley to have the life he wants and of course deserves, I dread to think what the next generation of disabled people will have to endure without the positive support of the ILF.
I beg you to listen to myself as a mother of a disabled son and also listen to all those disabled voices who deserve to be heard.
Give each and every person the ability to live and achieve their dreams just as you and I can.
The Paralympics just proves how amazing disabled people can be!!!’
Jon Clayton is also in receipt of ILF. Like Ashley he has carers whom he employs who understand his disability. His sister writes
‘My brother Jon is quadriplegic having been involved in an accident which was not his fault at the age of 18. He is now 54.
He is one of life’s truly inspirational people; an accomplished mouth artist – a gift he only knew he had after his life changing accident- living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.
He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.
He is both ordinary and extraordinary.
He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.
His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing etc. This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.
If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends.
The ILF has enabled independence. Given life, where life seemed over.
I would therefore urge you to do all you can to prevent this life enabling function – the ILF – from being eroded’
A fundamental concern for Jon, Ashley and others is whether they will be able to employ their specialist staff in the future. North Lincolnshire Council’s responded to this question on 9th June 2014:
‘We appreciate this situation may cause you concern as an existing Independent Living Fund customer and would wish to reduce any worry or anxiety you may have.
Allocation of future monies will be based on your updated assessment and support plan and on future Local Authority funding so at this stage we cannot give any specific guidance on the amount of monies that you may receive from us or cannot give guarantees on the future employment status of any Personal Assistants you may currently employ.’
As you can imagine such ‘reassurance’ only serves to heighten anxieties and build mistrust!
So I return to my central question – will the government guarantee that Ashley Jon and all those currently in receipt of ILF will not lose their independence as a result of their decision to close it. A decision I believe is aimed at saving money but might end up costing more in other budget areas such as health. A better way forward would be for government to engage with ILF recipients learn from their experience and find ways of shaping future services that are cost effective but continue to deliver true independence.
As Disabled People Against Cuts points out for the 17,500 people in receipt of ILF ‘the closure of the Fund will have a devastating impact on the lives on these individuals and their families. It also has a much wider significance because at the heart of this is the fundamental question of disabled people’s place in society: do we want a society that keeps its disabled citizens out of sight, prisoners in their own homes or locked away in institutions, surviving not living or do we want a society that enables disabled people to participate, contribute and enjoy the opportunities, choice and control that non-disabled people take for granted?’
Or in Mahatma Ghandi’s words “A nation’s greatness is measured by how it treats its weakest members.”
People like Jon and Ashley are not weak but strong. The ILF gives them independence and liberates their strengths. Now is the opportunity for the Minister to guarantee their future independence will not be compromised by the closure of the ILF.
DPAC would like to thank Nic and all the supportive MPs at the adjournment debate on ILF on 18th June 2014
See the ILF debate at: http://www.bbc.co.uk/democracylive/house-of-commons-27884690
Get your MP to the House of Commons Debate!
Wednesday 18th June 11am
The future of the Independent Living Fund will be debated in the House of Commons for the first time this Wednesday 18th June from 11 – 11.30am.
We need to make sure as many MPs know it’s happening and will be there prepared to stand up for the ILF and the future of independent living support for disabled people.
The fight for the ILF is far from over.
In March the Minister for Disabled People announced a new decision to permanently close the ILF in June 2015 following a ruling by the Court of Appeal in November 2013 which quashed the Government’s previous decision to close.
Last week ILF recipients launched a fresh legal challenge which you can read about here
Meanwhile #SaveILF supporters have been busy contacting their local councillors and MPs collecting sign ups to the campaign statement and spreading the word with the brilliant ILF postcard campaign: www.facebook.com/ILFpostcard
One supportive MP Nic Dakin MP for Scunthorpe has managed to get a debate on the future of the Independent Living Fund for this Wednesday 18th June 11 – 11.30am.
Whilst it is only half an hour, it is the first time the ILF and the fundamental question of the removal of disabled people’s right to independent living which its closure represents, has had a debate in Parliament.
This is an opportunity to make sure politicians know what the ILF is and why it is so important.
We need to take urgent action to write to our MPs, urging them to attend the debate, telling them why it matters and most importantly sharing your stories and experiences that show why we need not only to keep the ILF open but to reopen it to new applicants.
You can find your MPs email address and post address here.
Here is a briefing about the ILF you can download and send them as an attachment. ILF briefing 13 June 2014 (just click on the link)
If they can do it in Scotland, why not here?
DPAC is delighted to extend an open invitation to celebrate Independent Living Day with us on the 4th of July at the ‘Independent Living Tea Party ‘.
The party will begin at 2pm at the DWP, Caxton House in Tothill Street SW1. There will be fun & games, and entertainment; and of course, some civil disobedience.
We have come a long way since the demand for Independent Living was first made nearly 50 years ago. Then, as now, IL was our solution for how society supports disabled people to take our place as equals. For how society addresses inaccessible institutions, structures and process it created, which do more to disable people than their impairments ever could.
There are many strands of Independent Living, and all are under threat. Cuts to:
- Support funding – such Social Care, the ILF & Disabled Students Allowance;
- Education – in areas like the wholesale destruction of SEN Statements and the continued segregation of disabled children into ‘special’ schools;
- Transport – the withdrawal of Taxi-cards, freedom passes and the halting of planned works to make infrastructure more accessible, amongst a host of other cuts combine to make disabled people second-class citizens in society.
But we have fought this fight before – and won. Our Disabled Peoples Organisations, legal gains and the policy victories we have won previously are testament to the power, know how and skills disabled people have to develop solutions to problems created by society. We must celebrate these achievements and remind ourselves that each of these successes have had to be earned, no-one ever gave them to us without a struggle.
So celebrate with us, or alternatively create your own party. Get together with friends and supporters, and create the kind of vibrant, positive spaces we have always created. Bring the noise – bells, whistles, drums, pots & pans etc. Bring food to share. Bring your enthusiasm.
if you are planning your own party, here are some suggestions:
1) Choose your target –
focus on the important issues locally; support, education, transport etc – its up to you. Identify what you want to celebrate and who represents the biggest threat to that locally. Is it your local council or Uni? Is it a transport provider? Or is it someone else?
2) Tell everyone –
yes, EVERYONE. Media, campaign networks, activists, local people. DONT FORGET TO TELL DPAC so we can list and support your action!
3) Be heard, be seen –
make your event loud and proud. Bring music, choirs, drum, bells, whistles. Remind everyone out there that we won‘t be separated from society, we are society. We won ‘t go quietly.
4) We’re also holding a Twitter Party on the Hashtag
#IL4JULY so that people at the DWP and at other events round the country
can tweet in pictures of their events and we can all join in. Further
details to follow, watch this space.
The famous Boston teaparty led to a revolution against the British government let’s see where our teaparty leads…..
Please save the independent living fund!
“I got up this morning, brushed my teeth, showered, ate breakfast, got dressed, checked my e mails, went to work, had lunch with colleagues, met with friends on the way home from work, popped in on my mum to see she was alright before coming home to do a couple of hours work on my open university degree before bed. I was able to do all this because of the money from the Independent Living Fund that helps pay my Personal Assistant to support me to do the things I can’t manage to do directly because I have a condition that means my hands do not work and I get around using a wheelchair” – ILF recipient.
The money from the independent living fund helps pay for a personal assistant, and enables disabled people who need support to have a quality of life to do the same things everyone else can do. Live.
The government says “ILF recipients will be reassessed by their local authority, and will be funded by the local authority” The money given to the local authority to meet a disabled person’s support needs will not be ring fenced. The local authority can spend that money meant for disabled people and their support needs on other resources. Disabled people who need the support fear less or no support at all and then being placed into residential care, far from friends and family.
Imagine this; your local authority has cut your support needs. You would have to rely on the local pop in service from carers you do not know, to keep you clean, warm up a meal in the microwave, and convenient at the time for the carer but not a convenient time for you. If you need night care, you would then be forced to wear incontinence pads or even worse cathertised.
You would then be only able to shower once a week, have no social life, have to perhaps use a hoist and then excluded from every day activities outside, forced to give up your pet if you had one, no garden, forced into isolation, having to sack the personal assistant you relied on for many years with no redundancy for them.
Now you are thinking you do not want to go on anymore. Its how do I go on like this with little support? Due to the lack of support you are now isolated at home cut off from society and from friends and family and as the lack of support means no independence, no social life, can’t work, no quality of life, it would make anyone feel down, and even depressed. It’s awful to contemplate isn’t it?
Disabled people want rights. Rights to live independently in the community, to have our support needs met, so we can have a quality of life, and do the same things as everyone else does. Live.
Society forgets that we are human beings, people, we are mothers, fathers, brothers, sisters, friends, neighbours, colleagues, but society sees the impairment, not the person we happen to be. We are judged, discriminated against, and called a drain to society. Well, we are not!
People can be born with an impairment, or at some point in their lives can even be struck down with a devastating illness, hit by a car, lose your mobility need to use a wheelchair to get around, have a breakdown, could lose your job and need to claim benefits to live. The social security system was put in place to protect those who needed the support, who may be too ill to work. You need the support every day to carry out the simplest of tasks. Life is unexpected, it’s cruel and its tough, it can change in a flicker of an eye lash, and it can happen to YOU.
Life is really hard living as a disabled person every day. Trying to manage life with all the same worries as non disabled people. Money, keeping a job, family life, health issues, how to get around using public transport. It’s bloody tough.
“The independent living fund gave people with severe impairments the support needed to live life as we chose, so we could work, go shopping, feel part of society, a human being. A non disabled person is not used to thinking about how they would go to the toilet, get in and out of their home, get to work but we need to plan all those things in advance and ensure we have the support to do them.” -ILF recipient.
Our demand is to keep the independent living fund open, open it up to new claimants and open up independent living to all disabled people so we can keep our independence, and with support, have a quality of life and live.
All I ask of you is for your help. Help us save the independent living fund from closing on 30th June 2015. As disabled people, we want rights to live independently as possible, having a quality of life despite what we battle with every day with our disabilities and illnesses.
Why? Because we’re worth it! We are human beings and we want to be treated as such, not the stock the government and great swathes of society think we are. We are worth it! Help us keep the independent living fund open and help us in the fight for our rights so we can have a quality of life living in society as best as we can.
by Paula Peters
Take part in the Save the ILF Campaign:
Join the PCS ‘Save the Independent Living Fund Email Your MP’ Campaign http://action.pcs.org.uk/page/speakout/save-the-ilf
Visit, ‘Like’ and share the ILF Postcard campaign page on facebook
Take part and show support for the campaign – Print this picture, take a selfie with it and post to the ILF Postcard campaign page on facebook to support #SaveILF
Please show your support for the campaign by sharing and tweeting from the tweetpage dftr.org.uk/SaveILF or your own tweets using the #SaveILF hashtag
Ask your MP to sign EDM for #SaveILF https://www.writetothem.com/, unless they’ve already signed-check here http://www.parliament.uk/edm/2013-14/1234
Ask you MP to ask for an adjournment debate for the Save ILF Campaign https://www.writetothem.com/
Tweet these Independent Living Fund Videos and articles:
An Important Request on ILF from Mary Laver http://shar.es/BjyqK #SaveILF #ILF
What the Closure of the #ILF means to disabled people -Mary’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-mars-story-2/ #SaveILF #ILF
What the Closure of the #ILF means to disabled people – Justine’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-justines-story/ #SaveILF #ILF
What the Closure of the #ILF means to disabled people – John, Paul and Evonne’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-john-paul-and-evonnes-story/ #SaveILF #ILF
What the Closure of the #ILF means to disabled people – Roxy’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-oxys-story/ #SaveILF #ILF
What the Closure of the #ILF means to disabled people – Kathy’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-kathys-story/ #SaveILF #ILF
What the Closure of ILF means to disabled people – Richard’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-me-richards-story/ #SaveILF #ILF
What the Closure of ILF means to disabled people – Penny’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-me-pennys-story/ #SaveILF #ILF
What the Closure of ILF means to disabled people – Anthony and David’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-disabled-people-anthony-and-davids-story/ #SaveILF #ILF
What the Closure of ILF means to disabled people – Kevin’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-disabled-people-kevins-story/ #SaveILF #ILF
Second Closure of #ILF and our analysis of the equality analysis by DWP http://shar.es/Bm4hM #SaveILF #ILF
DPAC statement on government announcement on closure of the #ILF http://shar.es/BHRcl #SaveILF #ILF
How the closure of the ILF will affect lives http://www.internaldpac.org.uk/DPACClone/independent-living-fund/#sthash.dLgkwYIe.dpbs #SaveILF #ILF
What Local Authorities said about the Closure of ILF http://www.dpac.uk.net/2013/02/what-local-authorities-said-about-the-closure-of-ilf/ #SaveILF #ILF
A Nasty Cut people affected by the closure of the #ILF http://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/ #SaveILF #ILF
Second Closure of Independent Living Fund and our analysis of the equality analysis by DWP http://shar.es/BjygQ #SaveILF #ILF
There are many more tweets that you can use here: http://dftr.org.uk/SaveILF
The “Save The Independent Living Fund” postcard campaign is supported by GMCDP, ALLFIE, DPAC, Inclusion London and Equal Lives.
DPAC would like to thank everyone for making last week’s (April 12 2014) National Conference such a huge success. There was a huge turnout with over 150 disabled activists from all over the UK including many new DPAC members attending, but just as important there were hundreds of members and supporters beyond the venue taking part through social media – watching the video live-stream, tweeting and sharing comments, views and sending messages of support. This was fantastic work by everyone and a truly inspiring collective effort.
Here’s a brief outline of how it went.
The day was timetabled into sections beginning with practical reports and voting on policy motions. This was followed by two workshop sessions and then a closing session for everyone to feedback on the day. Four workshops were available to choose from in each Workshop session. Detailed reports on these will follow later.
John McDonnell MP, a longstanding friend and supporter of DPAC, gave a rousing opening speech to encourage everyone and remind us of the victories achieved so far. He congratulated disabled people and DPAC for fighting back, along with our sister organisation Black Triangle and WoW Petition initiators
As he finished he mentioned his own recent health condition which he said he felt brought him closer to our movement. Ellen reacted quickly by giving him a DPAC t-shirt and declaring him a full DPAC member to instant applause and cheers.
The Finance Report showed a healthy state of affairs for the time being thanks to individual donations, t-shirt and badge sales plus grants from the Edge Fund, the Network for Social Change, Trust for London and the Andrew Wainwright Trust. More fund-raising is necessary going forward.
1. Government Honours
This proposed that any future candidates for the DPAC Steering Group could thwart the network and collective ethos of DPAC if they had received a national honour like an OBE or MBE. The ‘BE’ refers to the imperialist British Empire which is still celebrated despite what we know of the suffering and oppression this caused. The motion conversations also suggested that any media attention would be focused on those with honours and titles, rather than on the collective network ethos that DPAC ascribes to. The motion was put forward as a rejecting of this possibility and that of the honours system more generally. This was defeated.
This motion stated DPAC opposition to discrimination on the grounds of gender, sexuality, age, faith, disability, ethnicity or status. It also empowered the Steering Group to terminate the membership of anyone who supported a party which holds discriminatory policies, like UKIP. This motion passed based on an appeals process being put in place
3. Steering Group Size
This motion sought to expand the Steering Group from 8 members to 12 in order to respond to increased activity and maintain a broad, diverse and inclusive profile. This was passed.
There were 11 nominees for the Steering Group. Conference took a vote on whether to vote for accepting all 11 nominees, or vote for them one by one. Conference voted to accept all 11 nominees. The new steering group are currently reviewing co-opted places and will get back to the additional people that applied past the deadline as soon as possible
It was highlighted that the working groups are important in taking DPAC forward. The co-chair said she hoped those who did not stand for the Steering Group but were still interested in getting involved would join these as soon as possible.
Finally, a big thank you to the Conference Organising group and Workshop leaders who worked so hard to make this wonderful event a reality.
Links to videos from the day are here with thanks to Occupy for live streaming on the day to make the conference inclusive to all are here
Links to pictures can be found on DPAC flicker here
Thanks to Pete Riches, Szucs Gabriella and Rob Peters
See you on the streets!
Also find us on Facebook with a group and open page under ‘Disabled People against Cuts’
We read with interest the piece in the Independent by Rachel Reeves and Kate Green regarding Labour’s response to the Work Capability Assessment 
Labour should realise that disabled people are deeply distrustful of any Labour reform of a Work Capability Assessment system, which Labour introduced in the Welfare Act of 2007 with the stated aim of removing 1 million claimants from the benefit system .
Our position has been and will be that the Work Capability Assessment is deeply flawed in its basic concept, not just in terms of the details of its delivery, and inclusion in the workplace for disabled people cannot simply be achieved by a ‘back to work’ test.
In the Reclaiming Our Futures, Disabled People’s Manifesto , we state that a priority demand from government is that:
A comprehensive and strategic plan of action is developed with disabled people and our organisations to tackle the discrimination and exclusion disabled people face in work and employment including: increasing quality and range of personalised support available to disabled people, strengthening disabled employees rights and tackling employer discrimination and poor practice
Other key demands include that:
Economic productivity must not be the only measure of people’s worth and value, volunteering offers as much value to society as paid employment. While we recognise that volunteering can offer additional skills, it should not be the default option for disabled people because of our exclusion from paid work
There must be policy and media recognition that there will always be disabled people who are unable or too ill to work. These individuals must be supported by a publically funded system. They should not be penalised or demonised as they are currently.
For true inclusion in the workplace for disabled people a wider approach is necessary including but not limited to:
• Will Labour commit to the restoration of Disabled Student’s Allowance,
• Will Labour commit to the restoration of the Independent Living Fund,
• Will Labour commit to the extension of Access to Work (AtW) to include unpaid voluntary positions,
• Will Labour commit to the reversal of the reduction of people who currently receive DLA, but will not receive PIP and also lose their Motability access,
• Will Labour commit to the reinstatement of the requirement for councils to produce equality schemes on employment and access
• Will Labour commit to the provision of accessible transport.
• Will Labour commit to the reinstatement of “day one” protection from unfair dismissal in employment law
• Will Labour commit to the provision of Employment Tribunals enforcing mandatory organisation-wide measures on preventing disability discrimination
• Will Labour commit to the provision that all government contracts, at a national, regional and local level, are only awarded to companies that are fulfilling measurable equality targets for the employment of disabled people
(for further points see reference 2)
These currently are some of the barriers to inclusion in the workplace for disabled people, and they will not be fixed by simply amending the WCA. The issue must be seen within the context of the wider interconnected system of barriers in place. It must be seen in terms of what a large majority of disabled people have already identified as key problems.
In terms of inclusion we also need from Labour, a recognition that for many disabled people to be able to work there has to be a nationally transportable social care system with a guarantee that people would keep the same levels of funding wherever they needed to move to work.
We need recognition that there is an onus on government and employers to fully accept the spirit of the Equality Act 2010  with its requirement to the opening of work opportunity to disabled people. Without this, no “fit for work test” aimed at cutting disability benefits will make any impact whatsoever on the numbers of disabled people who can attain and sustain employment.
We also need from Labour a stronger recognition that there are many disabled people who cannot enter the work place and should not have to live in fear of being pressured into doing so.
There is much that the article leaves out and that leaves us with a number of serious concerns and questions.
While we are not yet prepared to endorse in any way Labour’s new approach to the Work Capability Assessment, we do see the article by Rachel Reeves and Kate Green as a helpful starting point for discussions on the future of inclusion of disabled people, who want and are able to work, in the workplace and we would welcome an opportunity to meet with them and discuss this further. We would like meet with Kate Green and Rachel Reeves to ask the following questions:
1. Will Labour commit to stop spending public money on private
contractors and return any assessments of disabled people back to GPs
with medical evidence taken into account as well as give a commitment to
look at the barriers to work for disabled people who can and want to
work (in line with the social model of disability)?
2. Will Labour commit to a time and date to talk with DPAC, My Legal,
the Mental Health Resistance Network, Black Triangle, Deaf activists,
those with learning difficulties ( with an outreach of ½ a million
disabled people) to listen to the views of the largest network of grass
roots disabled people on the WCA and ESA?
3. If Labour are committed to scrapping the WCA when will Deaf and
disabled people, and those with mental health issues have sight of the
detail of any alternative Labour is proposing?
4. If Labour accepts the harm, devastation and premature deaths that have
been an outcome of the WCA why have they chosen to suspend their
prospective parliamentary candidate for St Austell and Newquay, Deborah
Hopkins for speaking out in public about the harm caused by the WCA.
5. Will Labour address the disproportionate harm that the WCA and
sanctions on ESA and JSA are causing to all disabled people, in
particular those with mental health issues and learning difficulties?
6. We along with many others insisted that a centralised Independent Living Fund
for Scotland be established and it has been done. They have also promised to re-open ILF to new users, with a commitment of additional funds and recognition of its importance to independent living and obligations to article 19 of the UN Convention on the Rights of Persons with Disabilities. Why has the Labour
Party not promised to re-establish it south of the border?
Many of the Statements included in this response are taken from the UK Disabled Peoples’ Reclaiming our Futures Manifesto and are endorsed by a UK network of disabled people and Deaf and Disabled Peoples Organisations, including: ALLFIE, Inclusion London, Equal Lives, DPAC, Inclusion Scotland, Disability Wales and the TUC Disabled Workers Committee , who between them reach several million disabled voters.
1. How Labour would reform the Work Capability Assessment http://www.independent.co.uk/voices/comment/how-labour-would-reform-the-work-capability-assessment-9265479.html
2. The Reclaiming Our Futures, Disabled People’s Manifesto http://disability-studies.leeds.ac.uk/files/library/UK-Disabled-People-s-Manifesto-Reclaiming-Our-Futures.pdf
3. The Green Paper: The new deal for welfare: Empowering people to work. 2006 http://webarchive.nationalarchives.gov.uk/+/http://dwp.gov.uk/docs/a-new-deal-for-welfare-empowering-people-to-work-full-document.pdf
4. Equality Act 2010 http://www.legislation.gov.uk/ukpga/2010/15/contents
DPAC Press Release: Top Corrie stars Support Save ILF Campaign
For immediate release: 16 April 2014
Coronation Street stars support the ‘Save the Independent Living Fund’ Postcard Campaign.
Stars of Britain’s longest running soap joined disabled people in their campaign to Save the ILF(1). The fund which provides support funding to almost 20 000 disabled people is to close in June next year the Government announced last month(2). See Facebook campaign page
Stars such as Bev Callard, who plays Liz McDonald, former Red Dwarf actor Craig Charles who plays Lloyd Mullaney and Jack P Shepard who plays David Platt ans several other stars posed with oversized postcards produced by campaign organisers who include DPAC(3) (Disabled People Against Cuts), GMCDP (4)(Greater Manchester Coalition of Disabled People), Inlusion London(5), Equal Lives(6) and others.
Despite having their original decision to close the fund over-turned at the Court of Appeal late last year(7), the Government has re-announced the closure following a new Equalities Analysis(8) – where officials admit levels of support cannot be maintained and some users may end up having to move into Residential Homes to have their support needs met. Funding will be devolved to Local Authorities for 1 year until 2016(9), but not ring fenced, meaning there is no guarantee the money will be spent providing support for users, or indeed any disability services at all.
DPAC member Paddy Murphy said ‘At an annual cost of just over £350m, this isn’t a hugely expensive fund to run. Users receive an average of just £337 a week to maintain their independence. The Government have admitted some will be forced to move into Residential homes, and others won’t get the level of support they receive now – some none at all. Local Authorities are seeing their budgets decimated, and their largest expenditure is on Adult Social Care, they simply won’t be able to afford to meet people’s needs. Disabled People will once again be forced to pay the highest price to fund the bailouts and rescue plans for the banks, which is the underlying justification for the cuts to public services.’
Editors Notes & contact details here firstname.lastname@example.org
Save the Independent Living Fund
Ways that you can take part:
Visit, ‘Like’ and share the The campaign page on facebook
Take part and show support for the campaign – Print this picture, take a selfie with it and post to The campaign page on facebook to support #SaveILF
Please show your support for the campaign by sharing and tweeting from the tweetpage dftr.org.uk/SaveILF or your own tweets using the #SaveILF hashtag
Ask your MP to sign EDM for #SaveILF https://www.writetothem.com/, unless they’ve already signed-check here http://www.parliament.uk/edm/2013-14/1234
Join the PCS – Save the Independent Living Fund Email Your MP Campaign http://action.pcs.org.uk/page/speakout/save-the-ilf
The “Save The Independent Living Fund” postcard campaign is supported by GMCDP, ALLFIE, DPAC, Inclusion London and Equal Lives.
We are very much looking forward to seeing everyone who can come to our national conference on Saturday but it is also important that those of you who can’t get there in person are able to take part. There are a number of ways you can do this:
- Send messages of support and your ideas for what DPAC should focus on over the next year to email@example.com or @dis_ppl_protest.These will be put up on the graffiti wall at the conference and included in the notes from the day.
- Watch the conference live on:
- Live tweet your questions and contributions to @dis_ppl_protest
Or email: firstname.lastname@example.org
The program for the day is at DPAC Conference 2014 Saturday 12th April – Conference Programme
We’ve had a great response to bookings for the DPAC conference on Sat 12th April in London, but places are now running out. Please email: email@example.com
with your details, number of places needed and any access needs.
12th April 2014 – 11am until 5pm
London Met University, Tower Building, 166 – 220 Holloway Road, London, N7 8DP
Since we started in October 2010 Disabled People Against Cuts has been at the forefront of the fight against austerity. With Atos on the run, and the bedroom tax on the ropes we are seeing the results of hard campaigning. But there is much more to do to ensure disabled people’s rights to live independently and with an adequate income.
The national conference is a chance for DPAC members to come together, to share experiences and discuss your ideas for moving forwards.
DPAC are working hard to bring to conference a surprise guest, a person who, if anyone has, has been the catalyst for the re-emergence of disability activism in the last few years, someone DPAC has enjoyed a close relationship with from visiting him at home to donating underpants to supporting his select committee appearances.
Workshops will look at: – Where Now for the Independent Living Fund campaign, – Developing a Social Model of Distress, – Winning the Argument, – Disability, Art and Protest, – Building a National Network of Disabled People’s Organisations and Direct Action practical skills among others.
Please note places are limited so priority will be given to DPAC members. For information about joining please contact firstname.lastname@example.org
The venue is wheelchair accessible. BSL and a note taker will be provided. For access information go to: http://www.disabledgo.com/access-guide/islington-council/london-metropolitan-university-tower-building
For access queries including booking parking please contact DPACfightback@yahoo.co.uk
To book places or for more information please contact DPACfightback@yahoo.co.uk
There are many different ways to be involved in the work of DPAC. All are equally valuable. We all have a role to play in campaigning for disabled people’s rights and a fair society, in whatever way we can from taking part in protests to tweeting, from administrative tasks to writing poems, from making banners to conducting research. Every contribution is important, formal or informal. Some ways to get involved are:
– Joining as a member. You will receive occasional urgent action and information updates from us and have the right to vote at our general meetings.
– Signing up to the website for regular information
– updates every time something new is added to our website.
– Joining or setting up a local group. Local groups need to follow the DPAC constitution. Local activity is really important for raising awareness about the impact of austerity on disabled people and leading the way in the fightback. For a list of local groups see HERE
– Or contact email@example.com
– Linking between DPAC and other campaigns and unions, for example Occupy, UK Uncut, the Anti Bedroom Tax and Benefit Justice Federation, Reclaim the Power, Fuel Poverty Action, Boycott Workfare, the People’s Assembly, local anti cuts groups, local trades councils and trade unions branches.
– Joining or being involved in the running of campaign sub-committees. We currently have sub-committees at different stages of development in the following areas:
o Atos and the Work Capability Assessment
o Independent Living Fund
o Access to Work
o Reclaiming the Social Model of Disability
o Disability, Art and Protest
o Direct action
o Inclusive Education
o Communications and social media
o Local groups
o Working with Disabled People’s Organisations – building a national voice
At the DPAC conference workshops will be held in each of the different campaigns and there will be a chance to sign up if you are not already involved.
– Being on the Steering group. At the conference we need to elect our steering group for the next year. There is more information about this below.
One of the roles we have to make sure we run in a way that follows our aims and principles and is accountable to DPAC members is being on the Steering Group.
Being on the Steering Group is a big time commitment and is often a difficult job because there is so much to do.
For this reason in order to stand for nomination to the Steering Group we need people who can sign up to:
· Minimum of 5 – 10 hours commitment per week
· Corresponding regularly by and checking emails to stay in touch with developments and inputting to the development of DPAC initiatives
· Co-ordinating particular areas of work, involving members widely and working with allies
· Being involved in at least two sub-committees
· Taking responsibility for either co-ordinating or providing an active and supportive link to at least two local groups
· Representing DPAC at meetings, events and conferences sometimes at short notice
· Working collectively and positively within a team of people with contrasting access needs
· Following DPAC principles and values at all times:
o Social model of disability
o Rights not Charity
o Inclusive Education (no ifs no buts)
o Working within the broad left
o Equal opportunities and social justice for all regardless of ethnicity, sexuality, gender, disability, age, faith, employment status, resident status. No to scapegoating of any kind.
It is important we have a diverse steering group covering a range of impairments, equalities strands and areas of the country. We also recognise that due to fluctuating impairments people may need to step back from activity for temporary periods.
The current DPAC constitution sets the number of steering group members at 8 but the current steering group will be putting forward a motion at the conference for members to vote on enlarging the steering group to 12.
All those wanting to put themselves forward for the steering group must be full DPAC members. If you would like to put yourself forward for the DPAC Steering Group please send a 500-700 word statement to firstname.lastname@example.org
explaining why you would like to be on the Steering Group, how you are able to meet the commitment and any existing political/group affiliations before the 31st March 2014.
This text will be put on the DPAC web site-you do not need to be able to come to the DPAC conference on the 12th of April to be considered for election to the steering group, but we’d appreciate it if you could.
We’d like to say a big thank you to the past DPAC steering group for all their work, and invite them to apply again if they wish to
The Government has announced that the Independent Living Fund will close on 30th June 2015 despite losing a Court of Appeal battle over this plan.
The Department for Work and Pensions originally planned to abolish the fund on 31 March 2015, but was forced to review the move after the Court of Appeal ruled that it had failed to comply with its legal duty to promote equality when making the decision.
The fund provides cash payments to top-up local authority social care support to around 18,500 severely disabled people so they can live more independently.
This fund is ESSENTIAL to disabled people up and down the country -a lifeline for many and must be re-opened to new applicants.
The fund closing after the next general election gives us a window of opportunity.
This petition is to Nick Clegg and David Cameron and it is calling on them to not close the Independent Living Fund. *As the PM does not have a public email address, this petition will send email to offices of IDS*
The fact that this fund will not end until after the next general election puts the onus on the Labour Party to either continue the fund or create an alternative fund that will be in place post-30th June 2015.
This petition calls for the Labour party to put forward their proposals for a replacement fund at the earliest possible time and have this proposal in their 2015 manifesto. We need to make them understand how important this support is to sections of the disabled community.
Sign -up, share and fill up IDS’ and other MPs inboxes so they cant ignore us at
report back from DPAc member who went along to see what Mike Penning the minister for disabled people had to say to the select parliamentary committee on ILF, PIP and WCA.
Anne Begg, said, can you please tell us what you are going to decide with the future of the ILF, as 22,000 severely disabled people do not know what the future holds for this fund, and the future is so uncertain for them, in light of the appeal that the claimaints won, has the minister made a decision on the future of the fund, if to close it in 2015 or re design it?
Mike Penning said, I have read the decision from the courts and I will not be appealing the decision, I totally accept it. I have not read the submission report as it has not been delivered to me, therefore i cannot make a decision when I have not have the report delivered to me. When a decision has been made all 22,000 claimaints in receipt of ILF will be communicated to (his words) and there is the money to let them know what the outcome of my decision will be.
He was told by Anne Begg, you are causing high anxiety and stress to some of the most severely disabled in society, surely you can tell them something to put their minds at rest? He said no, I cant and I wont as I have not read the report and as there is a court case around this, I do not want another court case on top, when the decision has been made on the ILF, all claimants will be notified.
It then went to PIP, Jason Feeney the operations director for PIP was also present as a witness, the PIP stats for new claimants will be released tomorrow. So far, 30,000 new claimants have been through PIP, and 15,000 claims were turned down, 1 in 7 claimants were denied PIP denial rate is at 50 per cent. He plans to release in Jan/Feb 2014 the next regions to see the roll out of PIP, this will be done in stages. The mandatory re assessment is set for October 2015 to finish in October 2017. They plan to assess 155,000 a quarter, will be on budget and on time.
Penning plans to introduce the PIP form in PDF format over time, but is worried about security issues around this at the moment.
With the Atos contract for PIP in the areas where Atos have PIP there are financial clauses in the contract where PIP do not meet there contract targets, He said, Atos are in it to make money “well, we all knew that didnt we?” The HCP are still receiving training to make sure the system works well, and understand there are delays with claimants, (we are now called “customers”) are experiencing at present, hence the staged roll out as they want to get it right.
Mr Penning, said, if claimants submitted enough supported evidence 17 per cent of people will not need a face to face assessment, and people with visual, hearing, and communication impairments can have an appointee speak on the phone to the PIP office on their behalf. He said, in regards to the questionnaire where there is a four week turn around to get it back to the assessment centre, it can be extended to four weeks, but, then the claim will end.
In regards terminal conditions, they are working setting up in each region and benefit office a terminal office department so that people who have a terminal illness will have their claims done and completed with in 7 days.
October 2015 for mandatory re assessments stays for current DLA recipients, there will be no more delays.
With regards Dr Paul Litchfield, his fourth wca review will be published tomorrow thursday 12the dec, along with the new claimant pip stats.
There was not the time to discuss the WCA and Mr Penning has been asked to come back to the commitee in the new year, and bring Dr Pritchard along as a witness to discuss the 4th review.
Anne Begg said she would e mail when the date of the call back for the W.C.A is.
The WCA will be heard on 19th feb, so well done to wow.
Martin and me represented dpac for this today, and the two of us faced three armed police at gun point in the corridor outside the committee room, at the end of the meeting Mike Penning was surrounded by armed police and taken up the corridor while we were watched carefully. Don’t know what they thought we were going to do.
I think we are rattling them big time, and the security level for all buildings has been raised to substantial as well.
Please write to your MP urgently, asking them to save the Independent Living Fund which exists to help disabled people who need the highest levels of support. You can contact your MP easily through this website: www.writetothem.com.
Below is a message and links to a video from Mary, who is directly affected by welfare cuts. At the end of this email is a template you can use when writing to your MP.
I’m writing to let you know about an emergency that is happening to disabled people in the UK right now as you read this email.
Some of Britain’s most disabled people – including me – are facing losing our right to living independent lives. The Independent Living Fund is a pot of money that helps disabled people who need the highest levels of support to do more than just exist.
But David Cameron’s government has already closed the ILF to new applicants – and now he wants to stop it for the group of 18,500 people who already receive it.
That will mean people like me will end up sitting alone looking out of the window for most of the day unable to even go to the toilet. Until now, despite being severely disabled by rheumatoid arthritis and unable to walk or use my hands or arms, I’ve been able to live a fulfilling life. In 2012 I was a Gamesmaker, and I carried the Olympic torch. Now, I will be imprisoned at home, and will even have to give up my beloved dogs Jack and Molly.
At 66 years old, severely disabled, and totally human and wheelchair dependent, I have found myself looking at the deep pond at the bottom of my garden, no longer wanting to live. My weight has dropped down from 9 stone to 6 stone.
But I didn’t want to just sit around feeling sorry for myself, so I asked campaigners to make a film about me. The trailer is right here. But you can also watch the whole 15 minute film by going to http://vimeo.com/79330726
You can read my full story by going to www.mirror.co.uk/news/uk-news/ros-wynne-jones-column-mary-laver-2855221
It’s not just the ILF the whole of social care provision is in crisis. Sooner or later this will affect most of you if you become disabled or when you get older.
Disabled people are also under attack from the Bedroom Tax, from the flawed Work Capability Assessment process and ATOS’ reviled tests, from the abolition of Disability Living Allowance,from cuts to council tax benefit and Benefit Caps.
We wonder what we’ve done to deserve it. We aren’t the ones who caused the banking crisis. But it seems as if we are the ones who are paying for it.
We wanted you to know what’s happening to disabled people under ‘Austerity’, because we thought if you did you’d want to campaign with us about it.
If you do, please write to your MP urgently, asking them to save the ILF. You can send them a letter at the House of Commons, or email them via www.theyworkforyou.com.
And please forward this email to everyone you know.
You could use this as a template:
The government has already been found guilty of illegally deciding to close the Independent Living Fund and now have to remake their decision. I believe that closing this fund would violate the human rights of disabled people who have the highest support needs to live independently in the community. Closure of the ILF would not only force disabled people back into residential care homes but also cause the UK to breach its obligations under the UN Convention on the Rights of Persons with Disabilities.
I urge you to watch this video, which gives a very real idea of how important this fund is, and to do everything you can to save this vital fund: http://vimeo.com/79330726
It’s been a busy few days for DPAC gathering evidence on the cumulative impact of cuts on disabled people, and on the crisis in independent living. On the 25th we heard moving and powerful testimonies of how the Government are ruining lives through their austerity regime. Disabled people are faced with a range of cuts and so called ‘reforms’ which are contravening our basic human rights. We are faced with stark choices between eating or heating while having our dignity stripped by a range of psychological attacks at the same time as having support removed.
Testimonies will be sent to the UN rapporteur on disability-thanks to everybody who came to London to tell their stories and to those that submitted their experiences through email. This event was originally arranged by Just Fair, however due to the rapporteur being unable to come to the UK due to illness DPAC and Inclusion London stepped in to run this at the last minute, so we could get these important stories out to the UN.
On the 26th the morning saw a hugely successful protest on fuel poverty organised by DPAC, Fuel Poverty Action, the Greater London Pensioners and UKUncut: ‘Bring down the Big Six – Fuel Poverty Kills!’ against the increase in fuel poverty deaths and increasing profits and prices of the big 6. Supporting groups included No Dash for Gas, Campaign Against Climate Change, Climate Revolution, Young Friends of the Earth, Frack Off London, Power for the People, Barnet Alliance for Public Services, Lewes Against the Cuts, SOAS Energy & Climate Change Society and Southwest Against Nuclear. There were also protests in Oxford, Lewes and Bristol.
In the afternoon of the 26th the Emergency meeting on the crisis in independent living took place at parliament hosted by DPAC and Inclusion London. An event originally planned by Just Fair to launch their report to the UN rapporteur which DPAC and Inclusion London stepped in to run with a new focus on the crisis in independent living. This was in response to the successful appeal outcome at the courts on the Independent Living Fund-and the continuing awareness of the crisis for ILF users, those trying to access local authority support and the Government’s apparent non-compliance with article 19 of the UN Convention on the Rights of Persons with Disabilities.
The afternoon launched DPAC’s report on the crisis in independent living and cumulative impacts of the cuts, one of many that DPAC is working on, as well as the film by Mary Laver an ILF user. The afternoon was complimented by speeches from John Evans and reflection on the past battles for independent living. We heard from the brilliant Louise Whitfield (one of the solicitors in the ILF case) and were treated to an excellent DPAC theatre performance which brought to life the reality of impacts on disabled people and the different barriers we face.
Despite extremely short notice the event was well attended by MPs and those from the Lords. Kate Green , Hywell Williams, Katy Clarke, Anne Begg, John McDonnell, Jim Shannon, Andy Slaughter, Baroness Campbell, Baroness Wilkins and a host of others including Mary Laver’s MP. Apologies were sent from Anne McGuire, Caroline Lucas, Lucy Powell, Jeremy Corbyn and Theresa Pierce
Mike Penning ‘our’ new minister for disability was invited but did not respond or send apologies!
Many thanks to all that attended, supported and worked so hard towards the afternoon-especially the many DPAC members and supporters that wrote to their MPs and publicised this. Some may ask why English national formal disability organisations with much more money and resources than us aren’t putting their energies into these types of activities all the time- we don’t have any answers or understanding on that.
We will have a more detailed report on the Emergency meeting on the Crisis in Independent Living event in Parliament with film and photos soon
Download DPAC report Crisis in Disabled People’s Independent Living
See Mary Laver’s film on ILF View the movie